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Happy Thanksgiving

Happy Thanksgiving from the Lupus Foundation of Florida

 

Rick, Maggi, and Linda

When Poor Health and the Holidays Collide

As people around the world celebrate the holidays, it’s a “happy/sad” time of year for many of us (to use an expression coined by Buddhist teacher Jack Kornfield). I want so badly to spend time with my loved ones, but I also know that I won’t be able to participate fully in the festivities and that even my limited participation will result in “pay back” later on.

 

To make matters more difficult, I find it hard to muster the discipline to limit that participation, even when my body is sending me strong signals that it's time to stop. For example, at our house in November, our son and his family and a couple of close friends come for a Thanksgiving dinner that my husband cooks. When everyone arrives, invariably, I start out with a burst of energetic socializing—a reaction to the fact that I spend so much time alone. I might be able to last longer if I paced myself, but I’m rarely successful at it: I’m just too excited to see everyone.

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Stress, depression and the holidays: Tips for coping

The holiday season often brings unwelcome guests — stress and depression. And it's no wonder. The holidays present a dizzying array of demands — parties, shopping, baking, cleaning and entertaining, to name just a few.


 
But with some practical tips, you can minimize the stress that accompanies the holidays. You may even end up enjoying the holidays more than you thought you would.

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Managing Stress & Depression

Extreme fatigue. An adverse reaction to the sun. Constant joint pain. Living with lupus means never knowing precisely what the day will bring. The unpredictability of the disease can cause depression and other mental health problems, such as stress and anxiety. This is known as reactive depression. Chemical or clinical depression is characterized by feelings of hopelessness and loss of interest in things you once enjoyed. It is a debilitating and prolonged state caused by a chemical imbalance in the brain and requires prompt professional attention.

 

“Everyone who has a chronic disease experiences depression of one degree or another,” says Patty Dunn, who has lived with lupus for 40 years and has learned ways to cope with the inevitable depression and sadness. Studies have found that between 15 and 60 percent of people with a chronic illness will experience clinical depression. The good news is that there are effective treatments and lifestyle changes that can help combat depression and the symptoms

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Rick McCollum: Know your health-care options

CEO and President of the Lupus Foundation of Florida, Rick McCollum, was recently published in the Gainesville Sun, Lakeland Ledger, and Tallahassee Tribune. Click below to read his informative article on lupus and making the right choices for you in the healthcare marketplace.
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Non-Toxic Peptides Could Put Lupus into Remission

Therapy with non-toxic peptides could improve quality of life for lupus patients, and may also point the way to a lupus vaccine. Northwestern University researchers have used special peptides to successfully suppress lupus in blood samples from 30 lupus patients, without the use of toxic drugs.
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Antimalarials prove protective against long-term lupus damage

Potentially modifiable risk factors for future irreversible organ damage in lupus patients include hypertension, the use of corticosteroids, and higher levels of inflammation early on, according to findings from the SLICC (Systemic Lupus International Collaborating Clinics) Inception Cohort Study. In addition, the study identified the use of antimalarial drugs as the one significant protective factor against steady accrual of irreversible organ damage in lupus patients.
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Ultraviolet light and lupus-new research

Ultraviolet, or UV, light is a tricky thing. It can lead to skin cancer, but can also help treat jaundice in newborns. Christopher W. Macomber, a Worcester surgeon and businessman, is working on a technology that will use targeted wavelengths of the light as treatment for some complex diseases."It isolates the better element of light," he said. Dr. Macomber's company, UV Therapeutics, was founded in 2010 and is starting to recruit patients for clinical trials, with the hope that it will treat people suffering from lupus.
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WebMD and Lupus

WebMD has an entire section devoted to understanding lupus and coping successfully. Check it out! You will find news, information, community and resources.
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