Click the button to 'Like' this message on Facebook
The Mahaffey Theater will donate $5 per ticket to The Lupus Foundation of Florida


Toni Braxton, an American R&B singer-songwriter, pianist, musician, record producer, actress, television personality and philanthropist will perform at The Mahaffey Theater for one night only, Wednesday, August. 28 at 7:30pm.

Braxton has won six Grammy Awards, seven American Music Awards, and 9 Billboard Music Awards. Throughout the years, she has sold more than 66 million records worldwide. Born a preacher’s child, Toni Braxton’s first professional experience was singing in the church choir. She went on to perform with her four sisters, Traci, Trina Towanda and Tamar and signed on with Arista Records. A solo recording career launched her into the spotlight with her work on the soundtrack of Boomerang, the Eddie Murphy film that sold 10 million copies worldwide with the classics “Another Sad Love Song” and “Breathe Again.”

Ms. Braxton won two Grammys® as Best New Artist and Best Female R&B Vocal Performance for “Another Sad Love Song” in 1993 and another Grammy® in the same category the next year for “Breathe Again.” She won a Grammy® for R&B vocal performance for “You’re Making me High” in 1996 and also two Grammys® in Best R&B and Best Pop Female Vocal Performance categories in 1997. Her signature song, “Unbreak My Heart,” ranks as the second top-selling single of all time by a female artist.

* The Mahaffey Theater will donate $5 to the Lupus Foundation of Florida for every ticket purchased to her show on August 28, 2013 with promo code: LUPUS

•   Purchase tickets
Lupus Education Class in Ft. Myers

Patient Education Class
Who Should Attend
Lupus Patients and Those Who Care for Them
10:15 AM
Saturday September 14, 2013

Edison State College
8099 College Pkwy
Building AA Room 168
Ft. Myers, FL  33919

Patient education classes are a free service of the Lupus Foundation of Florida.

•   Register today! It's free!
Kidney Disease Persists in Black Community

She wasn’t supposed to survive.

Cherryl Jones often heard those words of doom, and with good reason.

In the early 1980s, the Temple Hills, Md., resident fought tenaciously with systemic lupus, and then discovered she was pregnant.

While lupus and pregnancy often can prove to be a fatal combination, Jones received even more disconcerting news.

“In my third trimester, my kidneys failed,” Jones said. “I was devastated. All I wanted was to be able to see my child grow up. I didn’t know what I was going to do.”

•  
Lupus Diagnosis Often Comes "Out of the Blue"

COCOA BEACH — Lesa Taylor is not exactly the stand-around type. A former competitive swimmer, she walks, runs and goes to the beach when possible. She does yoga. She is the divorced mother of three of Cocoa Beach’s best-known athletes: professional skateboarders Adam and Dylan, and skateboarder-surfer Lea Taylor.

She also fights lupus.

“I first developed symptoms when I was about 15,” she said. “The doctors didn’t know what was wrong and . . . I finally was diagnosed when I was 22. I was shocked because I was never sick. How could I have lupus? I was an athlete.”

•  
New Insight into Lupus Heart Risk

Death of cells lining the blood vessels could be the reason why those with lupus have such a high risk of heart disease.
More than 1.4 million Americans, nearly all of them young to middle-aged women, have lupus, a severe disease of the immune system. Antibodies and immune complexes form, attacking tissue and organs. Many lupus patients die prematurely of a heart attack, stroke or kidney failure.
In the study doctors at the University of Michigan have observed high numbers of what are known as apoptotic endothelial cells in the blood of lupus patients. Endothelial cells are the cells that line blood vessels and help stop the formation of unwanted clots. In lupus, they seem to undergo apoptosis – or cell suicide – and so their protective function for the heart is lost.
•  

Fighting for Better Medicaid Drug Coverage

The S.L.E. Lupus Foundation once again joined many other patient groups in the "I Am Essential" coalition to submit this letter urging the Secretary of Health and Human Services to revise the final rule on prescription coverage for the expanded Medicaid program.

The plans must cover the 10 Essential Health Benefits described in the Affordable Care Act. However, the final rule from the Centers for Medicare and Medicaid Services (CMS) limits drug coverage by requiring plans to cover only the greater of one drug per class or the same number of drugs as contained in each class of drugs in the state selected benchmark plan. Historically, Medicaid beneficiaries have been able to access all drugs manufactured by companies participating in the drug rebate program. The final rule is a departure from the proposed rule and will provide beneficiaries in the expanded Medicaid program with a limited number of drugs, potentially putting their health at risk. The letter requests reconsideration of this rule and close monitoring for the expanded Medicaid program.

The S.L.E Lupus Foundation is part of the Lupus Research Institute National Coalition. The Lupus Foundation of Florida is also part of the LRI Coalition.


SHINE Can Help

 Welcome to the state health insurance assistance program for elder Floridians. SHINE provides educational materials and free unbiased insurance counseling to Florida elders, caregivers and family members. Our goal is to help elders understand and receive the health insurance coverage they need through Medicare, Medicaid, Prescription Assistance, Long-Term Care Planning & Insurance, and other health care issues.


SHINE also helps people who are not elders but are receiving Medicare or Medicaid.

•  
Clinical Trials are the Key to Moving Lupus Research Forward

While only one new drug for lupus (Benlysta) has been FDA-approved in over 50 years, patients with lupus might be surprised to hear that there is no shortage of potential treatments for their disease. In fact, the world of medical research is positively awash in new drugs that might help in lupus.

So what’s taking so long?

The problem is that researchers must figure out which of these many offerings work better than current therapies. Laboratory research can narrow the search somewhat, but it never tells the whole story. To really find out whether a drug is effective against a disease, it needs to be tested in people. Clinical trials are researchers’ way of doing this.

•   Learn more>>>
Lupus Awareness

Purple "Cure Lupus" car magnets 3 for $10

Orange "Life without Lupus" wristbands 10 for $10

UV light sensitive wristbands 3 for $10

Please share

Send an HTML version of this message to a friend.