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The Top 10 Things to Know About Cardiovascular Risk in Lupus

Lupus patients have a high risk for heart attacks and strokes. Follow the link to find out about the top 10 risk factors. Then register for the 28th Annual Lupus Awareness Seminar in Orlando. An entire session is devoted to cardiovascular risk in lupus patients.
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28th Annual Orlando Lupus Awareness Seminar


Lupus Foundation of Florida & UCF College of Nursing
28th Annual
Lupus Awareness Seminar
Saturday April 6, 2013
Harry P. Leu Gardens
1920 North Forest Avenue
Orlando, FL


11:00 Sign-in and Coffee
11:15 Welcome
11:30 Preventing Heart Disease in Lupus
           Linda Jaffee, MD, FACC
12:20 Complementary Therapies for Lupus
           Joyce Burr, PhD, RN, AHN-BC
1:10  Lunch
1:40  The Unique Challenges of Lupus in Children
          Ben Thatayatikom, MD, FACR, FAAAI


Register Now-Seating Limited
Free registration includes free parking, lunch, and admission to the park.
3 free CEUs for RNs and LPNs

If you appreciate this newsletter. If you appreciate our support groups. If you appreciate wonderful seminars like this, then please donate today. We need your help to reach out to those affected by lupus. If you don't do it, who will?

•   Register now-seating is limited!!
New Evidence That Smoking Increases Risk of Cutaneous Lupus

A new study published in Arthritis Care and Research showed that smoking increased the risk for patients to develop skin manifestations of lupus by 63 percent, based on data from a multicenter cohort study of 1,346 patients. The 1000 Faces of Lupus Cohort was funded by the Arthritis Society and the Lupus Society of Manitoba.
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ACR: Lupus Worse With Smoking

Patients with systemic lupus erythematosus (SLE) who smoke are not only increasing their risk of cardiovascular disease -- which is already elevated -- but may also be making their lupus worse, according to a large study reported here.
 
The largest study thus far on smoking and its effects on lupus, involving more than 1,400 SLE patients, found that current smokers had an odds ratio for myocardial infarction of 2.4 (95% CI 1.4 to 4.2, P=0.001), Meenakshi Jolly, MD, of Rush University Medical Center in Chicago, and colleagues reported.
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Lupus Florida Walks

Join us for a Lupus Florida Walk in St. Petersburg or Tampa. The funds you raise in the walk stay right here in Florida to help those affected by lupus. Your support funds cutting edge research. Your support provides education and advocacy for lupus patients. Your support makes this regular eNews possible. Register for a walk today!

For a registration fee of $25 you get a tote bag. If you raise $50 you get the official walk T-Shirt too!. Tote bags and T-Shirts will be distriubted at the walk only. They will not be mailed. The cost of postage and "man-hours" of mailing is prohibitive. We want to be the best stewards we can be of the funds you raise.

6th Annual Lupus Florida Walk
Saturday May 11
8 AM-10 AM
South Straub Park
St. Petersburg

Click here for details and to register

6th Annual Lupus Florida Walk
Friday June 21
6 PM-8 PM
Ballast Point Park
Tampa

(Along beautiful Bayshore Boulevard)
Click here for details and to register

Get Smoke Free!

You know you want to quit! Smokefree.gov is an amazing resource! You can sign up for text messages to keep you on track. You can talk with an expert about quitting. You can find tools to help you quit.

You can even join a research study that will help you along the way.

Looking for better ways to quit online? Join the iQuit Smoking Study. Everyone who joins will get a scientifically proven personalized stop smoking plan. You may also receive:

  • Free nicotine patches
  • Free phone support

Earn up to $40. Open to adult smokers in the United States who are planning to quit. Click here for more information.

•   Go to Smokefree>>
Having a Hard Time Explaining Your Experience of Lupus?

As much as we want those who care about us to understand what life is like with lupus, we are often at a loss for words. Many of us have found those words in Christine Miserandino's Spoon Theory. (People in the Tampa support group can often be heard wishing one another an 'abundance of spoons.'

Here is how it begins:

My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.
 

As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward kind of stare, instead of continuing the conversation. She then asked me out of the blue what it felt like to have Lupus and be sick. I was shocked not only because she asked the random question, but also because I assumed she knew all there was to know about Lupus. She came to doctors with me, she saw me walk with a cane, and throw up in the bathroom. She had seen me cry in pain, what else was there to know?

Click here to read the Spoon Theory.

•   Read the Spoon Theory>>
Videos to Help Explain Life with Lupus

These videos by Christine Miserandino (Spoon Theory) are helpful in getting our loved ones to understand what it is like to live with lupus.

Outing Your Lupus
Linda Recommends

"The Autoimmune Epidemic by Donna Jackson Nakazawa is an astounding book....It is the kind of book that will rivet you and scare you. It will make you angry. It will amaze you with the courage of some of the people described in the book...The Autoimmune Epidemic is every bit as compelling as Upton Sinclair's The Jungle...It is also every bit as necessary as An Inconvenient Truth....

You will leave this book with no reservations about the veracity of the conclusions: put simply, there is no doubt that autoimmune diseases are on the rise and increasing environmental exposures of toxins and chemicals is fueling this rise. The research is sound. The conclusions unassailable....

•   Click to purchase>>
Lupus Awareness

Purchase orange "Life without Lupus" wristbands

Purchase purple "Lupus: Find the Cure" car magnets

Purchase UV sensitive wristbands that change color when it is time to apply sun block or seek shade

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