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Walk Kick Off Celebration

Join us for the walk kick off celebration!

May 2 from 5-7 PM 

400 Beach Seafood and Tap House

400 Beach Drive NE, St. Petersburg, FL 33701.

Free appetizers and cash bar

•   RSVP today!
Lupus Florida Walks in May and June

Join a Lupus Florida Walk today!
 
Saturday May 11, 2013
South Straub Park
St. Petersburg
8 AM-10 AM
 
Friday June 21, 2013
Ballast Point Park
Tampa
6 PM-8 PM
 
 
Lupus Foundation of Florida Applauds Support for Biosimilars Legislation

TALLAHASSEE, Fla., April 3, 2013 /PRNewswire-USNewswire/ -- The Lupus Foundation of Florida applauds the Health Policy committee of the Florida Senate for the passage of Senate Bill 732 out of committee. The legislation will allow biologic medicines to be automatically substituted with interchangeable biosimilar medicines by pharmacists. It would also ensure doctors are made aware of product substitution and ensure records of biosimilar substitution are kept for a reasonable amount of time.
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Urgent Action Alert

The facts:

  • Biologic medications are used in the treatment of autoimmune disease, cancer, and HIV/AIDS.
  • Biologics are very expensive.
  • Some biologics are going off patent.
  • Biosimilars are being developed.
  • Competition should drive prices down.
  • Pharmacists can swap your biologic for a biosimilar without telling you or your doctor.
  • Senate Bill 732 would require the pharmacist to tell your doctor if a switch is made.

 

Please contact your state senator asking him/her to support SB 732. Please contact your representative asking him/her to support H 735.

Click here to find your senator

Click here to find your representative

Dear  ___ :

I am a constituent of yours writing to express my opposition to any amendment to SB 732 or HB 365 that would remove notification from the pharmacy to a physician if a substitution is made by the pharmacist. HB 365 and SB 732 are important bills that would allow greater access to biologic medications when new biosimilar therapies come on the market. Biologics have helped revolutionize medical treatments to patients which chronic, debilitating diseases and conditions such as multiple sclerosis, cancer, lupus, and kidney failure. However, biosimilars are not generic. Therefore if the pharmacist makes a substitution without physician notification the patient’s health could be placed at risk. Additionally, not notifying the physician undermines the continuity of care in the event the patient experiences an adverse reaction.

Notification to a physician is a basic step in patient care. It helps physicians to maintain accurate patient records and is critical for patient safety. Without physician notification, I urge you to vote against the bill.

Sincerely,

Name

Address

Orlando Awareness Seminar

Congratulations to Pat Weinstein, Martha Emerson, Charlene Darcelin and the Orlando/Winter Park support group for an outstanding lupus awareness seminar! Thank you for all you do to improve the lives of lupus patients and those who care about them!

Support Groups

Lupus isolates. Support groups connect. If you are struggling with lupus, why not come to one of our support groups? We work hard to make sure our support groups are positive places where people with lupus can share information and coping strategies. One of the biggest complaints we hear from lupus patients is that their healthy family members and friends "don't get it" when it comes to living with lupus. At our support groups, we do "get it." Come to a meeting and check it out.

 

Note the Largo support group will NOT meet in May. They are all coming to the Walk in St. Pete!!

•   Find a group>>>
2 Arkansas researchers awarded $1.3M NIH grant

LITTLE ROCK, Ark. (AP) — Two researchers at the Arkansas Children's Hospital Research Institute have received a $1.3 million grant to student how children's immune systems are affected by a common pollutant.

The National Institutes of Health awarded the four-year grant to Kathleen Gilbert and Sarah Blossom. The researchers are studying how chronic low exposure to trichloroethylene, known as TCE, may contribute to diseases like diabetes, lupus and autoimmune hepatitis.

TCE is an industrial solvent that is present in some water supplies because of improper disposal.

The team has proven the link between TCE and autoimmune disease in previous studies.

Both researchers work at the University of Arkansas for Medical Sciences' College of Medicine. Gilbert is a professor of microbiology and immunology and Blossom is an assistant professor of pediatrics.

Exceeding 10 mg/day prednisone increased cardiovascular events in lupus

NEW YORK – Current use of prednisone above 10 mg/day more than doubles the risk of cardiovascular events in patients with systemic lupus erythematosus, according to a study conducted by Dr. Michelle Petri and her colleagues.

"Do everything you can to keep patients with lupus below the 10-mg/day cutoff for prednisone," said Dr. Petri, director of the Lupus Center at Johns Hopkins Hospital, Baltimore. She presented the results of her work at a meeting sponsored by New York University.

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Associations Between Cancer Risks, Disease Activity, and Drug Therapy in Patients with Lupus -

The long-held belief that immunosuppressant drugs used to treat systemic lupus erythematosus (SLE) and disease activity may increase the risk of cancer was somewhat dispelled by a recent study closely examining these relationships.
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Awareness

 

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Purple "Lupus: Find the Cure" car magnets